Emergency Room AGAIN!!

Well it was another one of THOSE days again. I haven't had one in awhile, thank goodness! So I had more troubles sleeping again and Trish let me sleep in and went to church without me. When she came home we had to change my bandage on my Hickman line. Just my luck, it looked, and felt, like I had another site infection AGAIN! It really was painful to even touch. So we paged the specialists nurse and she called the doctor. The doctor decides that it would be best to go to the E.R. and get it checked out just to be safe. Anyone who has ever been to the E.R. knows what a pain in the behind that can be, especially on the weekend! So the specialist nurse called ahead to let them know we where coming and what tests the doctor needed them to run to check out my line. To no big surprise, no one at the E.R. new what we were talking about. So we asked them to page my nurse. Two hours later they came back and said that they could not get ahold of anyone. So they took off the bandage to look at it and said that it didn't look that bad and prescribed a broad spectrum antibiotic and sent me home. This stupid drug was going to cost us 42 dollars after the insurance paid for their portion!!! So we paged the nurse and she called back only to find out the E.R. had released us without even doing the tests. She told us to go back and tell them to run the tests, and she called the E.R. and really chewed them out. So this time they took us right back, and they where told that they would not be charging us for another visit, and that I was not to wait but to be taken right back and taken care of. I went back and this time the E.R. was totally crowded! But they did what they where told and took me right back, I was out of there in less than an hour this time. I still had to buy the drug and start taking it though. So our WHOLE afternoon, 6 hours at least, was spent on my medical stuff again. At least the kids were still with grandma so that they didn't have to go with us.

I do have to say that the IMC, the new hospital in Murray, was an incredibly awesome sight to see!! It was huge!! You could easily get lost in the emergency room it was that big. They can definitely handle any massive emergency problem without having any problems. They had so many rooms and nursing stations that I almost needed a wheelchair to get to the minor injury rooms in the back. Also, the rooms where they put us had televisions in them to help pass the time. It still took 3 hours to get me discharged the first time though. Now if that is not a window into my medical life I don't know what is!! That is just more fun for me, hah hah. Poor trish was having a meltdown though, this kind of stuff really puts her through the wringer with worry. I just take it all in and just have to laugh it off. I'm not dead yet and I'm not planning on getting there anytime soon. It is a very good thing I am so mellow because it does help trish calm down easier. She doesn't understand how I am not freaking out over all this medical stuff, and I don't know what to tell her. I just am way to easy going to really get freaked out all that much. It makes us a good match as a family though. If she where as easy going as I am nothing good would ever happen to us. And if I were as wound up as she gets sometimes I think that we would have to take therapy, and pills to try to help us, hah hah. Well that's all for today, and hopefully for a while!!!!

Music anyone??

Well if it weren't for Trish I don' think that I could do much of anything on this crazy blogspot! You may or may not care for the music, but it is a varied bunch of stuff so you might like some of it.

I think that I spoke to soon about the good days outweighing the bad. It seems like my get-up-and-go got up and left. It doesn't help when you can't sleep either. Having sleep apnea and a c-pap machine, and insomnia all at the same time is not conducive to great health. My sugar levels are still all over the place,and I totally stumped both the doctor and the diabetic educator at the same time. I am following their directions to the letter of the law, and we have still had to change both dosing and carb ratio counters on both sets of insulin twice now. I am still having levels that are higher than they should be. Talk about headaches, try going from high levels, to low levels, and then back to high levels without eating or taking insulin. It is a good thing I have prescription headache medicine or would probably not even get out of bed on some of these days!

It is a good thing I have to get justin off to school in the afternoon, or I would probably sleep all day long. The little toad always wants to go earlier and earlier every day. For some reason he wants to be the first one there every day. I have tried to go earlier but there is always one boy there every time. So I finally had to tell justin that he may never be the first one to get to school. I am glad that he is so eager to be there, especially since mom told me she used to have to chase me to school with a stick to get me to go. I am glad I don't remember that! I do remember not liking to go, except for the social aspect. I hated the schoolwork part of being there.

I think that I just started rambling there for a minute, and I am sorry. I think that is just in our family genes. I know that dad likes to ramble on when he gets to talking to someone, even if it is a total stranger that he just struck up a conversation with! It is funny to watch when that happens because he sometimes forgets why we are wherever we are when this happens! I will try to keep up with my posts, apparently I am out posting Trish right now and she thinks that is funny! Until later.

Finally some PICTURES!!!

Well I finally put some pictures on here and found out it really wasn't all that hard to do. As you can see it is a varied potluck of pictures. The oregon trip was awesome, even though I had to spend a good part of a day in the E.R. while I was there. I always manage to get some sort of infection on the site where my medicine line enters my chest, but only if we go on a vacation, or trish and the boys go to Florida. That is just part of the fun of having a hickman line stuck in your body!

The trip was still fun. The coast of Oregon is just my ball of wax. You have the forest behind you and the beach in front, and none of this is to high of an elevation for me. I didn't have to use my oxygen once the whole time we were there!!

Now, about my new favorite holiday! I have slowly, over the years, tried to find more and better ways to scare the teenagers in our neighborhood. We have plenty of them to work with! The best year was 2007, when I wore the scream costume. I have never seen so many people try to act brave while still running so fast across our lawn that their feet don't ever touch the ground. I have also never scared so many adults in their own homes while trick or treating with trish and the boys. It really was the best year yet, and unless trish will let me part with some more of her hard earned money, I don't think that I will be able to top that one for awhile. Oh well, I will just have to think harder and work smarter to come up with new ideas to scare the kids this year. Hopefully the beard will help!!

So, this is my first time ever trying to do this "blog thing." I have had time to check out some of the other blogs both in our family and our friends and I am very impressed. I know mine won't ever look that good but at least I can try to put out some information about me so that whoever wants to can look and see how I'm doing.

Here goes. As most, if not all, already know I have a terminal illness called Pulmonary Hypertension. My health has never been great, but as far this condition is concerned I am doing better than I should with the type of pressures they are seeing every year when they do a cath on my right heart. They, (the doctors) have to give you the worst case scenario when they give you a diagnosis so they told me 3 to 5 years as a life span for my disease. Well guess what, I am in my 5Th year right now and I am not planning on going anywhere anytime soon. I do have my good days and my bad days as most of you know, but for the most part the good days outweigh the bad.

Now, the next thing I am fighting right now is my diabetes. I was diagnosed with type 2 in October of 2006. I was able to control it well with pills and dieting but that only lasted 1 year. As my sugars started getting worse they switched me to insulin shots 2 times a day. That worked for about 3 months. So I finally went to see a Endocrinologist, and was told that my type 2 had progressed to type 1, which normally takes most type 2 diabetics 10 to 15 years before this happens. I guess it just wouldn't be me if everything was normal, as most of you know. So now I am doing battle with type 1 which means a minimum of 4 shots a day, and constant weighing and measuring of every piece of food that goes in my mouth. Oh well that is just life I guess you do what you can and what you have to in order to stay healthy.

Enough of that. I think that this blog thing will help me so those who want to see how I am doing can look on my blog. I will try to keep it updated, no promises though. I am kind of a slacker when it comes to writing or typing or anything of that sort. For those who are reading this right now, please don't think this is a POOR PITY ME site. It's not, it is just a way for those who want to see how I am doing can do so easily.

Well that's it for now, I am going to try and get pictures and things like that on here if I can ever figure this thing out all the way. We, (Trisha and I) also have another site for the family. I think that she already sent out the web address for that site. So long.